Justina Pelletier Case Emblematic of Difficulties Faced by Children with Rare Diseases

According to a contemporary Continuing Education course for nurses: Philip Patrick was born prematurely with multiple birth defects, including malrotation of the bowels and craniosynostosis. For the first ten months of his life he failed to thrive and endured repeated surgeries and hospitalizations in four different cities. Doctors at Vanderbilt Hospital treated him for multiple […]

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